Are we Imposters in the Children’s hospice?
Martin House has become our safe haven. This time we visited was for respite and a review of his medication and his various’ paperwork’ so not really too taxing , however each time we make… View Full Post View Post

Summer Holidays with a Disabled Child and Siblings
How many times have we wanted to be on our own? We have wanted to spend time away from the kids and the other half? Many I’m sure. well, this weekend I did. I had… View Full Post View Post

Cheated by death… again
Arjun did not die ( this time). He fought through and survived, but not for long. I think we had lulled ourselves  into a false sense of security again, he had recovered, he always recovers… View Full Post View Post

Waiting for death
It was only a this time last year that I sat with Arjun in hospital after he had been rushed in from school; vomiting blood, the medical term being ‘coffee granules’. Why? Because when there is a… View Full Post View Post

Mummy is Sick
When mummy is sick who looks after her? In the most it is nobody, but that said I am lucky that I have my husband, who despite his lack of culinary skills can make a… View Full Post View Post